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KMID : 0338420200350051136
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The Korean Journal of Internal Medicine
2020 Volume.35 No. 5 p.1136 ~ p.1144
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The health-related quality-of-life of chronic obstructive pulmonary disease patients and disease-related indirect burdens
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Choi Hye-Sook
Yang Dong-Wook
Rhee Chin-Kook
Yoon Hyoung-Kyu
Lee Jin-Hwa
Lim Seong-Yong
Kim Yu-Il
Yoo Kwang-Ha
Hwang Yong-Il
Lee Sang-Haak
Park Yong-Bum
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Abstract
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Background/Aims: Many chronic obstructive pulmonary disease (COPD) patients have physical limitations. We investigated EuroQol five-dimensions five-level (EQ-5D-5L) of COPD patients to assess quality of life, and assessed indirect burden including time expenditure to visit doctor, home care rate, and caregiver related burden.
Methods: We recruited 355 COPD patients according to severity of airflow limitation that severity was set at 10% mild, 40% moderate, 30% severe, and 20% very severe in two primary and 11 secondary/tertiary hospitals. Eligible patients were aged ≥ 40 years, who have been diagnosed with COPD for more than 1 year. Patients were recruited between June 2015 and October 2016.
Results: The quality of life tended to decline with age, from mild to very severe impairment, as revealed by the EQ-5D-5L scores and the EQ visual analog scale. Family caregivers accompanied 22.6% of patients who visited outpatient clinics, and 25% of stage IV COPD patients. During emergency visits and hospitalization, this figure increased to > 60%. The home care rates were 28.5% for stage I patients, and 34.4, 31.8, and 52% for stage II to IV patients, respectively. The percentage of caregivers who stopped working was 13.6%. The EQ-5D index was strongly associated with the dyspnea scale (r = ?0.64, p < 0.001). The average required time to see a doctor and visit the pharmacy was 154 minutes.
Conclusions: In patients with COPD, the EQ-5D index decreased and disease-related home caregiving increased with airflow limitation. We considered the caregiver- related burden when making a strategy for COPD management.
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KEYWORD
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Pulmonary disease, chronic obstructive, Health expenditures, Caregivers, Quality of life
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